دانلود کتاب سیاست عمومی در مراقبت از ALS / MND: یک چشم انداز بین المللی

سال انتشار: 2021

تعداد صفحات: 365

زبان فایل: انگلیسی

فرمت فایل: pdf

حجم فایل: 5MB

ناشر: Palgrave Macmillan

This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions.